Alzheimer's support groups: where to get real help and advice

Feeling alone while caring for someone with Alzheimer’s is common. A good support group can change that—giving you practical tips, emotional backup, and contacts for doctors, legal help, or respite care. You don’t need to wait until things get overwhelming. Join a group early and build a toolbox of resources and people who get it.

How to find and choose a group

Start local: call your primary care clinic, memory center, or hospital. Libraries, senior centers, and faith groups often host meetings. The Alzheimer’s Association runs national and local chapters with in-person and phone groups—search their site or call the helpline. If you prefer online, look for moderated Facebook groups, dedicated forums, or Zoom meetups run by trusted nonprofits.

Before you commit, ask a few simple questions: Who runs the group—volunteers or a professional? Is it for caregivers, people with early-stage Alzheimer’s, or both? How large are the meetings and how often do they meet? Is attendance free or is there a fee? Also check privacy rules—will others record or share stories outside the group?

What happens at meetings and how to get the most from them

Most meetings mix check-ins, a short topic (care strategies, finances, behavior tips), and time for questions. Some include guest speakers—doctors, social workers, or lawyers. Take a small notebook or a phone to jot down tips and names. If a meeting triggers strong emotions, that’s normal—step outside, breathe, or ask the facilitator for a brief break.

If you’re a caregiver, go with a goal: one meeting to learn about local respite options, another to ask about safety devices, and another to hear how others handle sleep or agitation. For someone with early-stage Alzheimer’s, look for memory cafes or activity groups focused on socializing and brain exercises rather than caregiver support.

Online groups are great for convenience, but protect privacy: use a nickname if you prefer, avoid sharing full addresses or medical records, and keep discussions to general experiences unless the group is a secure, closed medical forum.

Want to start a local group? Keep it simple. Book a library room, set a recurring time, post a short flyer at clinics and pharmacies, and invite a guest speaker for the first meeting. Choose a facilitator to keep things on track and establish a few ground rules about confidentiality and respectful listening.

Support groups aren’t a cure, but they help you feel less alone, find better tips for daily care, and make smarter choices about medical and legal steps. Try a few groups—you’ll quickly spot the ones that fit your needs and give you useful, real-world help.